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Patients with chronic or life-altering diseases (such as cancer, rheumatoid arthritis, or multiple sclerosis) must fight both their illness and the financial burden it places on their family as they struggle to pay for their medications. It is estimated that over 35% of these patients have insurance but still cannot afford the co-payments for the specialty therapeutics they need to treat or control their disease, which can range from $300 to over $3000 per month for a single dose. These underinsured patients are not eligible for most free drug or patient assistance programs, leaving them with few alternatives. They may be forced to do without their medications or go into debt to obtain them, greatly affecting their health and quality of life. Our mission is to improve the health and quality of life of underinsured patients with chronic disease, cancer, or other life-altering conditions who cannot afford the medications they so desperately need.
LymeDisease.org seeks to make the patient voice stronger, to support patient-centered research, and to create a future where Lyme patients can receive the treatments they need to get well. Its focus is on large scale science-based advocacy, communications and big data research. Founded in 1989, it is one of the oldest, largest, and most trusted sources of patient information on Lyme disease, drawing millions of unique website visitors a year. Its MyLymeData patient registry and research platform has enrolled over 14,000 patients and is among the top 5% of patient-led registries in the nation. Its communications network distributes resources and educates the public about the science of tick-borne diseases via website content, blogs, social media, and an online journal, the Lyme Times
It is the desire and mission of Hospice of Guernsey, Inc.: To integrate all dimensions of end-of-life care, such as physical, social, psychological, and spiritual needs. To provide dignified, compassionate, comfort-oriented care to terminally ill in our community To empower those facing end-of-life, the ability to live their lives with peace and dignity. To make our services available to all that need them, including those who survive by qualified and competent team which commits to continuously improve the quality of care they provide.
THE GUILD'S AND ITS AFFILIATES' MISSION IS TO HELP EACH INDIVIDUAL REACH HIS OR HER MAXIMUM POTENTIAL AND TO HELP FAMILIES COPE WITH THE RESPONSIBILITY OF CARING FOR A DISABLED FAMILY MEMBER AT HOME.
Hope in Focus is a 501c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. Our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by LCA and other rare retinal diseases.
THE MISSION OF HEARTS FOR ALS NY IS TO ACT AS A RESOURCE FOR PATIENTS AND CAREGIVERS, AND INCREASE AWARENESS & UNDERSTANDING OF ALS THROUGH VOLUNTEER SERVICES AROUND MONROE COUNTY AND THE SURROUNDING AREA TO IMPROVE THE QUALITY OF LIFE FOR OUR PALS.
The Little Baby Face Foundation seeks to transform the lives of children born with facial deformities through corrective surgery. World-class surgeons and medical providers at the finest facilities in NYC volunteer their time to deliver the best surgery and medical care, free of charge, to these children who are in financial need worldwide. The foundation provides travel to and from New York City for these children to undergo surgical procedures. Additionally it provides medical information about facial deformities to families, healthcare providers and the public, and supports related research.
Paramount Community Living And Rehab is a caring community that supports life for all ages while enhancing physical, social, emotional, and spiritual wellness through caring staff, innovative programs, and benevolent support. We are also a not for profit retirement community located in Newton, Kansas.
At Seamark Ranch, our mission is to provide a nurturing Christian home and family system that gives children from families in crisis the tools they need for a brighter future. Through a family home model, a specialized residential school and the lessons of life on a working farm community, Seamark Ranch provides the ideal setting for love, stabilization, healing, education and empowerment.
Imagine A Way believes every child with autism should have the opportunity to reach his or her full potential.
THE HOSPICE PROMISE FOUNDATION'S MISSION IS TO ASSIST PERSONS IN HOSPICE CARE AND THEIR FAMILIES WITH ESSENTIAL, NON-HOSPICE RELATED EXPENSES THAT THEY ARE UNABLE TO AFFORD THEMSELVES.
International Mosaic Down Syndrome Association is designed to provide support, information and research to those touched by mosaic Down syndrome. IMDSA also strives to increase awareness in the medical, educational, and public communities throughout the world.