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Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Since 1970, the OI Foundation has doubled funding for research every five years, for a total investment of more than $3.3 million. Funding is available for postdoctoral fellowships to encourage new investigators to begin a career in OI research, and seed grants for preliminary research. All applications are reviewed by the Foundation's Scientific Review Committee, which includes many preeminent OI researchers and clinicians. Funding also supports the OI Registry and the Linked Clinical Research Centers. The potential for results in OI research is growing, with recent advances in gene therapy, a new diagnostic test, and drug therapies under study.
Dementia Society raises awareness and education across the United States and Canada for the syndrome known as Dementia (including Alzheimer's disease, Vascular Dementia, Lewy body, FTD, and other causes). We connect families to local resources; create meaningful therapeutic moments for those living with Dementia and their caregivers through non-medical programs that include music, movement, and the arts. We recognize and invest in outstanding Dementia care, innovation, and research.
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
We fund and provide long-lasting insecticidal nets (LLINs) to protect those at risk from malaria.
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.
Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is a 501(c)(3) nonprofit organization dedicated to identifying effective PF treatments and assisting those living with the disease. The brothers experienced firsthand the devastating effects of PF when their sister claire passed away from the disease. Both brothers were also diagnosed with PF, and it was their vision and dedication that led to the creation of the foundation.
Supporting patients and families while promoting research, education and awareness.
TO PROVIDE A HOME AND AN EXTENDED FAMILY TO PERSONS WITH TERMINAL ILLNESSES SO THEY CAN DIE WITH DIGNITY SURROUNDED BY THE UNCONDITIONAL LOVE OF GOD. WE WILL USE OUR LIVED EXPERIENCE AS A RESOURCE FOR OTHERS.
The mission of the Alzheimer’s Foundation of America (AFA) is to provide support, services and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide, and fund research for better treatment and a cure.
The Lupus Foundation of America (LFA) is the oldest and largest national nonprofit voluntary health organization focused on improving the quality of life for people with lupus. Our unique dual mission serves the ongoing needs of people affected by lupus today while leading efforts to find a cure – from care to cure! Through the national office in Washington, DC and a nationwide network of chapters, offices, support groups and community representatives, the LFA conducts programs of research, education, and advocacy. The LFA is leading efforts to bring national attention and resources to bear upon lupus in order to shine a light on this medically underserved disease, accelerate the pace of medical research on lupus, build support for the needs of those affected by lupus, and elevate lupus to a place of prominence on the nation’s health care agenda.
The mission of Southeastern Guide Dogs is to create and nurture a partnership between a visually impaired individual and a guide dog, facilitating life's journey with mobility, independence and dignity.